Listings
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| Contact a Family Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. www.cafamily.org.uk  - more details » |
| Human Growth Foundation Information about growth-related disorders through education, research, and advocacy. Member driven organization. www.hgfound.org  - more details » |
| Office of Rare Diseases Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. rarediseases.info.nih.gov  - more details » |