Rare Disorders

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Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
www.cafamily.org.uk  -   more details »
Human Growth Foundation
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
www.hgfound.org  -   more details »
Office of Rare Diseases
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
rarediseases.info.nih.gov  -   more details »
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